Article Text
Abstract
Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.
- Advance Care Planning
- Neurological conditions
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Footnotes
Collaborators Written by DW following round table discussion.
Contributors DW: chair of a specific palliative care group for the myotonic dystrophy group and chief author. Committee members and reviewed the article: CB, GE and E-JA. TW: specific advice on traffic light system. CT: overall chair of the myotonic dystrophy guideline group.
Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.
Competing interests None declared.
Provenance and peer review Not commissioned; internally peer reviewed.