Article Text
Abstract
Background 30–40% of people require professional support to manage grief. During the pandemic, UK deaths increased by over 17% compared to the previous 5 years. Levels of unmet need persist and waiting times have increased. Greater availability of evidence-based bereavement support is needed.
Aim To co-produce and evaluate an online bereavement support package for guided or non-guided self-help intervention for people with moderate bereavement support needs.
Method Co-production principles were used, with representation from bereaved people, service providers supporting bereaved people, clinical and academic experts in grief and psychological therapies and multi-media experts. The support package was called ‘My Grief My Way’ and used Acceptance and Commitment Training (ACT) to help people deal effectively with their grieving. A mixed methods approach combined rapid review, followed by qualitative and quantitative evaluations and user testing in iterative cycles. Qualitative data were gathered on the support volunteers and bereaved users experience of ‘My Grief My Way’. Quantitative analyses included wellbeing, attitudes to grief, impacts of grief, QoL, and social support.
Results In phase one a logic model was created to specify intervention targets, processes of change and outcomes. In phase two the ‘My Grief My Way’ website was created, with videos of real people describing common bereavement experiences, videos of expert delivery of ACT for grief, exercises, and worksheets. Data collection is ongoing and will be completed in time for full results to be reported. Initial evaluation is promising, with participants and support volunteers describing the co-production process as meaningful and ‘My Grief My Way’ as accessible, acceptable, and helpful.
Conclusion ‘My Grief My Way’ is an online support package for people with moderate bereavement needs, based on co-production and evidence based psychological principles. It has strong potential to help increase the accessibility of bereavement support to a large section of the population.