Article Text
Abstract
Background ‘Digital legacy’ is the digital data we leave behind after we die, curated from social interactions in the form of messages, emails, online profiles, and media stored on gadgets or remote servers. In this digital age, electronic devices are omnipresent, making a digital estate unequivocally inescapable. Yet, few people have arranged for what happens when they are no longer able to manage their digital estate.
Aims To review the hospice’s current practices regarding the discussion of ‘digital legacy’ with our patients, as well as to explore the potential impact of staff education and the provision of resources, such as informational leaflets, on their ability to facilitate these conversations.
Method This Quality Improvement Project was structured around a whole hospice education session on digital legacy, followed by an informal assessment of current practices. Insights were then gathered from subject experts and existing research which guided the creation of the information leaflet.
Results Results indicated a subjective lack of knowledge across the multi-disciplinary team (MDT) and a lack of awareness about appropriate information sources. This highlighted the necessity of equipping staff with practical resources, resulting in the development of a leaflet introducing the subject, with guidance on managing a digital estate, and links to additional information. Following the educational session and the distribution of the leaflet, staff said that they felt better equipped to initiate discussions about digital legacy with patients.
Conclusion The findings of this Quality Improvement Project identified a notable knowledge gap within our MDT regarding digital legacy. In response, we implemented an education and resource-focused solution. Future projects will evaluate patients’ awareness of digital legacy and the effectiveness of our informational leaflet in improving this. Ultimately, we hope to continually adapt our practice in discussing digital legacy alongside the rapidly evolving technological landscape to better support our patients.