Article Text
Abstract
Background Delirium is a serious and distressing condition, which affects around 20% of adults admitted to hospital and 35% admitted to hospices (Watt, Momoli, Ansari, et al. Palliat Med. 2019;33(8):865–877; Scottish Intercollegiate Guidelines Network. SIGN 157. Risk reduction and management of delirium. 2019). Yet it often goes undiagnosed and under-treated by healthcare professionals; and families and informal carers receive little information about how they can help the person affected (Woodhouse, Siddiqi, Boland, et al. BMJ Support Palliat Care. 2022;12(2):187; Finucane, Lugton, Kennedy, et al. Psycho-Oncology. 2017;26(3):291–300).
Given limited resources are available, we sought to develop educational videos showing how to support terminally ill people with delirium. Video was chosen as an effective mode of delivery for education and training, which can be used to reach a wide audience.
Aim To develop two short, animated videos, providing easily accessible and engaging, evidence-based guidance on identification of delirium and support of terminally ill people, for families, informal carers and healthcare professionals.
Methods Co-design of videos with patient and public representatives, healthcare professionals, the Marie Curie Information and Support Content team and a designer with health and social work experience. Video scripts and storyboards based on current evidence were developed. Then stakeholders helped refine content in line with the needs of each target audience. Ensuring accessibility to diverse audiences was a key aspect of the process.
Results We developed two delirium information videos, that are available to view by anyone, in any location:
The family/informal carer video explains what delirium is, its causes, and ways to support the person with delirium (3 minutes).
The healthcare professional video provides more detailed information, focusing on detection, use of the 4AT delirium detection tool, and treatment (7 minutes).
Conclusion Our delirium care information videos can be used in training and will be accessible to anyone via the Marie Curie websites, YouTube channel, and key websites where delirium resources are shared. These videos will support better delirium care towards end-of-life, and will be reviewed as new evidence emerges.