Article Text
Abstract
Background In the early 2020s our ‘Wellbeing’ services were paused due to the COVID-19 pandemic. As restrictions eased, we re-launched a ‘Living Well Service’, prioritising a goal-orientated palliative rehabilitation ethos (Tiberini & Richardson. Rehabilitative palliative care: Enabling people to live fully until they die, a challenge for the 21st century. Hospice UK; 2015) and seeking alignment with key national priorities.
Aims Our Living Well Service steering group saw an opportunity to:
Deliver a more equitable service, reaching more people living with life–shortening illness through community partnership, enhancing their social connections and empowerment (National Palliative and End of Life Care Partnership. Ambitions for Palliative and End of Life Care: A national framework for local action 2021–2026).
Raise patients’ awareness of digital legacy issues (Stone. Digital exclusion and health inequalities. The Health Foundation; 2021), engaging them proactively to address these.
Method To extend our reach, open-access drop-ins were established by our Clinical Nurse Specialist, Community Engagement and Therapies Leads. Patients and carers enjoyed connection and mutual support in the hospice café, while seamlessly accessing professional intervention as things are needed. Staff sensitively encouraged interaction. Leaflets advertising the drop-ins were shared widely. Community groups such as Dementia Awareness, Care for the Carers and Hands-on History delivered activities and presentations. Our Digital Health Lead delivered geographical reminiscence sessions with a Virtual Reality headset, and briefed patients on digital legacy issues. 52 weekly sessions were held, average attendance of 12 (range 6–19). Evaluation via patient surveys at the start and conclusion of the project, the first offering us useful feedback that improved the quality of Drop-Ins.
Results Well-attended Drop-Ins at our Living Well Hub embraced personalised palliative care, maximising reach into the community and deploying technological innovation to engage patients in goal planning.
Conclusion The transition of wellbeing to a Living Well Service has been a successful endeavour. The two surveys have allowed us to evaluate and adjust the Drop-In in response to feedback. It has been a great opportunity to link community engagement, digital health and clinical input to broaden and strengthen what we can offer to our patients and carers.