Article Text

Download PDFPDF

P-26 ‘This isn’t anybody’s home’: the views of hospice users on the suitability of homelike hospice design
Free
  1. Lucia Crowther1,
  2. Ruth Slatter2,
  3. Elsbeth Robson1 and
  4. Miriam Johnson3
  1. 1School of Environmental Sciences, University of Hull, Hull, UK
  2. 2Institute of Historical Research, School of Advanced Study, University of London, London, UK
  3. 3Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK

Abstract

Background The impact of hospice design on health outcomes and the satisfaction and wellbeing of patients, visitors and staff has received scarce attention (Adams. Change Over Time. 2016;6(2):248–63). In particular, views of patients and their families are often absent from qualitative studies (Bellamy. Designing dying well: Towards a new approach to the co-production of palliative care environments for the terminally ill [PhD thesis]. Cardiff University; 2022). Homelike design is recommended for hospice settings internationally (Verderber, Refuerzo. Innovations in hospice architecture. Taylor & Francis Group; 2010) but its suitability and acceptability to hospice users in England is unknown.

Aim To explore the views of hospice users and staff in England on the suitability and acceptability of homelike design in hospice buildings.

Methods Ethnographic field work in two hospices with adult in-patient units in England including, i) non-participatory observation, ii) individual in-depth, semi-structured interviews with patients (n=8), family members (n=7) and staff (n=13), and iii) focus groups with staff (n=9). Observational diaries and transcripts were analysed in NVivo using thematic analysis. Data analysis was informed by critical geography of architecture approaches (Lees. Ecumene. 2001;8(1),51–86).

Results Three themes were identified, with homelike hospice design viewed as: desirable; inappropriate; difficult/impossible to achieve. Staff who described homelike design as desirable saw it facilitating palliative care delivery and a welcoming atmosphere; others expressed concerns that it sent the wrong message about standards of care and desired length of inpatient stay. Patients and families were most likely to describe homelike design as difficult/impossible to achieve, many having rejected homemaking practices. Concerns across participant groups focused on practicalities, infection control, and differing homelike design preferences across demographic groups, including suggestions that homelike hospice design prioritised preferences of white management staff, or could be ‘too posh’. Participants differentiated between literally homelike design, and creating homely atmospheres, most favouring the latter.

Conclusion The diversity of views expressed show homelike hospice design to be a contested issue for hospice users and staff. Literally homelike design should not be recommended for hospices in England without establishing whether concerns about potential exclusivity can be mitigated.

Statistics from Altmetric.com

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.