Article Text
Abstract
Background St Elizabeth Hospice serves an increasingly ethnically diverse population, under-represented within both hospice referrals and our compassionate communities engagement. We are committed to responding to the evidence base of inequalities in end of life care (Care Quality Commission. A different ending: addressing Inequalities in end of life care: an overview report. 2016; Hospice UK. Equality in hospice and end of life care: challenges and change. 2021) and co-producing hospice services with communities we hardly reach. A launch event held in June 2022, enabled a co-produced ‘Hospice for All’ action plan and the formation of a project group committed to improving end of life care and bereavement experiences for multi-ethnic communities.
Aim To improve end of life care and bereavement experiences for multi-ethnic communities.
Project methods
World Café inspired methodology (Brown & Isaacs. The world cafe book: shaping our futures through conversations that matter. Berrett–Koehler; 2005) structured a launch open event followed by monthly meetings held in a community setting to progress the action plan.
Compassionate Communities approach (Mills, Abel, Kellehear, et al. Lancet. 2024;404(10448): 104–106); with co–design, joint decision–making.
Community Asset Based Development (ABCD) approach (Harrison, Blickem, Lamb, et al. Sage Open. 2019; 9(1)).
Research methods This project formed part of a PhD multi-case study ‘Co-production within integrated care: participatory action research’. Ethics approval was granted by the University of Suffolk.
Participatory research approach Following monthly project meetings, a further hour’s meeting was devoted to six co-researchers reflecting on the co-production approach.
Results Project:
Co–designed poster distributed within diverse communities, QR code evidenced increased access to hospice website.
Virtual tours produced in 11 languages.
Compassionate conversations training culturally adapted.
One community champion joined the Hospice Engagement Group.
Increased referrals from multi–ethnic communities with increased use of interpreting services.
Research - key themes:
Mutual learning and benefit.
Co–delivery in and by the community.
Group, organisational system culture.
Conclusion The co-production approach combined with Compassionate Communities led to a co-delivery model with and by the community. A participatory research process alongside a service development provides conversational learning, shared understanding and new insights towards becoming a ‘Hospice for All’.