Article Text
Abstract
Background Although a high proportion of Australians would prefer to die at home, many people are hospitalised at the end-of-life. It is vital that the environment in which inpatient palliative care is provided supports the needs of patients and their families.
Objectives This study aims to describe the design, set up and operation of an independent palliative care facility, including the model of care and challenges encountered.
Methods This study presents findings and reflections derived from our experience in setting up a stand-alone independent palliative care facility in regional Victoria.
Results Anam Cara House Geelong (ACHG) is a not-for-profit palliative care facility. It is architecturally designed to provide a homely environment whilst being purpose-built to hospital grade. It has 12 completed single rooms with ensuites and views of nature. Medical equipment for oxygen delivery, suction and hoists are hidden. Pets are welcome and loved ones are supported to stay overnight with movable furniture and fold out beds. There are multiple open communal areas to encourage social interaction, an on-site kitchen, a library and resource centre, as well as a contemplation room with a mobile aquarium which provides a quiet space for reflection. The landscaped gardens and outdoor areas are easy to traverse and navigate for people with limited mobility. All patients with a life limiting illness are eligible for admission for symptom management or end-of-life care, regardless of their geographic location. Holistic person-centred care is provided by an interdisciplinary team which includes palliative care physicians, registered nurses, trained volunteers, and a spiritual care practitioner. Palliative care physicians are on site seven days a week including public holidays, and are on call when they are off site. The facility also provides a Living Well Day Palliative Care Program, led by nursing staff and trained volunteers. Patients in this program participate in activities such as memory making, arts and crafts, yoga, music and art therapy. There are also outpatient clinics where patients and their families can be seen in consulting suites by palliative care physicians and a spiritual care practitioner to assist with symptom management, coordination of care and advance care planning. Additionally, ACHG has a close partnership with Deakin University and facilitates placements for medical and nursing students. Ensuring the financial sustainability of an independent palliative care facility involves a multi-faceted approach with diverse funding sources, strategic partnerships and community support. ACHG works closely with various stakeholders, including local community organisations and healthcare providers to ensure the facility meets the needs of patients and their families.
Implication of findings The need for palliative care will continue to increase with our ageing population and the rising burden of chronic diseases. As such, it is likely that more new palliative care facilities will be required. Setting up a unique palliative care delivery model has required extensive design and planning. The learnings from our recent opening will provide valuable insights and strategies for healthcare leaders and policy makers aiming to establish similar independent facilities to improve the provision of end-of-life care in our community.