Background Two hospices provide separate support across the same county, for individuals and their loved ones affected by Motor Neurone Disease (MND). To achieve equal access to regular collaborative holistic assessments and support from the Multi-Disciplinary Team (MDT) (National Institute for Health and Care Excellence. Motor neurone disease: assessment and management. [NG42], 2016), a hospice based clinic where specialist MDT support could be accessed, alongside social and practical advice was identified.
Aims To provide an equitable approach across the county for people with MND and their loved ones to access support from specialist health professionals (Raynor, Alexander, Corr, et al. J Neurol Neurosurg Psychiatry.2003;74:1258–61) in addition to support from the Motor Neurone Disease Association (MNDA) optimising the quality of life for all (Flemming, Turner, Bolsher, et al. Palliat Med. 2020; 34(6):708–730). It would also enable regular reviews with close collaboration between the MDT services involved (O’Brien, Whitehead, Jack, et al. Bri J Neuroscience Nurs. 2013;7(4)).
Methods A one-hour appointment would be available with the MND Clinical Nurse Specialist, and respective hospice Occupational Therapist and Physiotherapist with a holistic review (Oliver. Palliat Care Res Treat. 2019; 1–14) and assessment being undertaken. The MNDA were invited to support the clinic to optimise the support available for the individual and their family. After each appointment an outcome letter incorporating the action plan for respective professionals would be sent, ensuring a collaborative care approach.
Results The clinic has enabled core MDT members to see and review individuals collaboratively supporting a cohesive approach to patient care and support, with 13 clinics and 52 appointments being available. Also, it has provided the opportunity to indirectly introduce the hospice setting and its services, maximising the support opportunities available for individuals and their loved ones at an early stage.
Conclusion The monthly clinic is a well-established integral part of the care and support in the county for people living with MND, ensuring they have equitable access to regular, collaborative MDT reviews and support. Further development of the clinic is being explored including the hosting of the area MNDA support group and stand-alone support for those caring for a loved one with MND.
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