An estimated 1 in 6 of the population is either affected by or diagnosed with a neurological condition at some point in their lifetime. The complex needs of these patients need a comprehensive approach to care that addresses the physical and psychosocial needs, often this group of patients are supported through Living Well or Day Therapy Units. As we returned to a new normal after the pandemic, several support groups locally had discontinued. In response to this local gap in services, we recruited a Neurological Conditions Coordinator and launched the NeuroNetwork. The role was developed to bring together healthcare professionals to help facilitate an integrated holistic approach to supporting those with complex needs. Key specialist nurses now join monthly to network and share knowledge. The initial relationship building further impacted on positive MDT working, and early identification of patients who may benefit from our services.
With around 800,000 hospital admissions resulting from the effects of living with neurological conditions, we further expanded with a Clinical Nurse Specialist with a specialist interest recruited into our specialist palliative care team to not only support complex symptom management but also conversations around advance care planning.
We have also started a support group for patients which empowers those with a neurological condition to get involved with physical activities, in addition to keeping minds active and giving the opportunity to meet new people. Often this group provides an initial introduction to Compton Care in a safe social environment. The coordinator’s role can range from signposting and supporting patients to achieve their goals, which could be anything – from supporting one of our transition patients going to college, to finding a job, to working with a patient with Parkinson’s Disease in feeling more confident with enjoying trips out.
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