Amyotrophic Lateral Sclerosis (ALS) is a progressive, life-threatening disease; therefore, much of the care provided to ALS patients is palliative. It involves helping patients and families cope with symptoms, improving quality of life and functional status, and making decisions about goals of care. Healthcare providers recognise barriers when initiating a Shared Care Planning (SCP) process. The lack of specific training directly impacts the perception of self-efficacy and the ability to carry out an SCP process with ALS patients. Patients with neurodegenerative diseases can be even more challenging due to the specific and complex needs that these patients have. Perceived self-efficacy is one of the main predictors of success in learning processes and promoting the acquisition of new behaviours and positive outcomes. Argentina does not have a national SCP program and has no systematic approach to SCP for ALS patients yet.
Objective To assess health care providers who assist people with ALS in Argentina’s perceived self-efficacy in SCP before and after a specific multicenter training program.
Methods A prospective descriptive instrumental study planned in 3 stages: 1. nominal multidisciplinary group to identify barriers to implementing SPC for ALS patients; 2. Design and pilot application of the multicentre training programme with pre/post evaluation of self-efficacy with the ACP-SEs scale validated in Argentina and using Kirkpatrick’s model to evaluate the training programme’s impact; 3. Production and edition of the SPC training manual for healthcare providers in ALS patients. The ACP-SE scale consists of 19 items scored on a 5-point Likert-type scale to which socio-demographic and professional experience data are added.
This project is progressing. We will show preliminary results from the two first phases.
Conclusion With professional reflection and pre- and post-systematized, reproducible, and evaluable training in specific ALS-SPC, a validated scale to assess self-efficacy will allow us to assess the program‘s impact.