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36  End-of life care provisions for minority ethnic groups living in the UK: a literature review
  1. Inayah Uddin1,
  2. Caitlin Spooner1,
  3. Henry Llewellyn2,
  4. Anthony Kyriakides-Yeldham1,3 and
  5. Bella Vivat1
  1. 1Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK
  2. 2Mental Health of Older people, Division of Psychiatry, UCL, London, UK
  3. 3Barts Health NHS Trust, London, UK


Introduction The population of minority ethnic groups in the UK is rapidly growing. A palliative care priority is therefore to ensure the availability of and access to care that meets the diverse needs of people of all ethnicities.

Aims To explore the research base on end-of-life (EoL) care for minority ethnic groups, building on Evans et al (2012) review of primary research on minority ethnic groups and end-of-life care in the UK.

Methods In our initial scoping review, we systematically searched MedLine, Embase, and CINAHL from inception to 2022. The full review is ongoing, and by January 2023, additional databases (Web of Knowledge, BIOSIS, INSPEC, Cancerlit, ASSIA/ProQuest, PsycINFO and AMED) will be included.

Two review authors independently screened the papers by title and abstract, and then full texts, and agreed the final set for inclusion

Results We identified 1,367 citations across the three databases, retrieved 83 full-text papers, and included 29 studies. Over half the studies (n=20) used qualitative methods. The other studies employed quantitative (n=7) and mixed methods (n=2). Most studies (n=19) focused primarily on South Asian and Black Caribbean populations. Ten papers included patient, informal carer, and healthcare professional participants in combined studies; the other papers focused on individual groups.

Conclusions Our preliminary findings from this initial scoping review suggest that there has been a significant increase in EoL research with minority ethnic groups since the 2012 review. Our completed review will provide comprehensive understanding and knowledge of EoL care research with minority ethnic communities over the last 10-years.

Impact Identifying and synthesising current research of EoL care for minority groups will inform key recommendations for HCP’s and policymakers, to assist in recognising and addressing the palliative needs of minority ethnic groups.

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