Background Like many hospices throughout the UK (Swann, Easton, McGuinness et al., 2021. BMJ Support Palliat Care. Apr.29), our day service was forced to close due to COVID-19. We have developed a new way of working – ‘Live Your Life’. This is developing and evolving with ongoing evaluation.
Aim We aimed to:
Put people at the heart of decisions and involvement in their care.
Pilot a combination of Goal-Setting and Action-Planning (G-AP PC) (Boa, [PhD thesis], 2014) and Assets Based Community Development (ABCD) (Russell, 2022) alongside palliative support to enable people with life-limiting conditions to live well.
Untether the service from our building, and open access, enabling more people to engage with support, including carers.
Methods We designed a model of working between hospice services and communities, in co-production with existing service users. Data collection includes:
Outcome measures - Therapy Outcome Measures (TOMs) (Enderby, John & Petheram, 2013) and the Australia - modified Karnofsky Performance Status (AKPS) (Abernethy, Shelby-James, Fazekas, et al., 2005. BMC Palliat Care. 4:1).
Anticipatory care planning.
Feedback from people and their families.
Results From 01/08/21- 19/04/22, 88 referrals were received from:
Hospice CNS = 78%
Other hospice professionals = 4%
External professionals = 12%
Self-referrals = 6%
15 carers and 88 people received support through a combination of phone, face-to-face and virtual connection, engaging in goal-setting conversations and connection with communities. Results so far show an average increase in participation, wellbeing, performance and anticipatory care planning conversations (before referral 65%, after referral 88%).
Conclusion Initial findings suggest that this way of working enables support for people in the way that suits them best, without them having to come into the building. Self-referral enables a shift in power from professional to person. Hospice services and communities are creating bridges, working together to empower people to drive care to meet their needs. Continued evaluation and data collection will provide further insight into this innovative and new way of working.
Statistics from Altmetric.com
If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.