Background More young people with complex life-limiting conditions are living into adulthood, generating greater demand for appropriate care (Fraser, Gibson-Smith, Jarvis, et al., 2021. Palliat Med. 35:1641). We implemented Project ECHO (Extension of Community Healthcare Outcomes) to improve young people’s palliative care, Sept 2019 - Dec 2022.
Aim(s) Evaluate Project ECHO and associated National Transition Community of Practice (CoP) as a mechanism to transform palliative care for young people.
Methods Following expressions of interest, three ECHO Hubs were trained and a CoP established (year 1). Our appointed Evaluation Partner is analysing qualitative and quantitative evidence (obtained throughout) applying a logic model.
Results Work in progress; findings demonstrate enhanced knowledge, confidence and peer support. Key metrics:
ECHO Immersion Training x3 Hubs (Dec 2019).
10 ECHO sessions per year x3.
Quarterly Transition (Professional) meetings: ‘Really helpful, a wealth of experience and enthusiasm…’
141 CoP subscribers (March 2022).
Conclusions Children and young people’s needs are diverse, complex and require a higher profile (NHS. The NHS long term plan. 2019). Initial findings reveal a positive contribution to learning and improved outcomes reflecting NICE Guidance (National Institute for Health and Care Excellence. [NG43], 2017; National Institute for Health and Care Excellence [NG213], 2022; National Institute for Health and Care Excellence. [NG61], 2019). Our Transition project addresses gaps in knowledge across the UK.
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