Article Text

Download PDFPDF

P-44 Transforming care for young adults with complex and life-limiting conditions
  1. Carrie James,
  2. Angela Horsley and
  3. Susanna Shouls
  1. Hospice UK, London, UK


Background More young people with complex life-limiting conditions are living into adulthood, generating greater demand for appropriate care (Fraser, Gibson-Smith, Jarvis, et al., 2021. Palliat Med. 35:1641). We implemented Project ECHO (Extension of Community Healthcare Outcomes) to improve young people’s palliative care, Sept 2019 - Dec 2022.

Aim(s) Evaluate Project ECHO and associated National Transition Community of Practice (CoP) as a mechanism to transform palliative care for young people.

Methods Following expressions of interest, three ECHO Hubs were trained and a CoP established (year 1). Our appointed Evaluation Partner is analysing qualitative and quantitative evidence (obtained throughout) applying a logic model.

Results Work in progress; findings demonstrate enhanced knowledge, confidence and peer support. Key metrics:

  • ECHO Immersion Training x3 Hubs (Dec 2019).

  • 10 ECHO sessions per year x3.

  • Quarterly Transition (Professional) meetings: ‘Really helpful, a wealth of experience and enthusiasm…’

  • 141 CoP subscribers (March 2022).

Conclusions Children and young people’s needs are diverse, complex and require a higher profile (NHS. The NHS long term plan. 2019). Initial findings reveal a positive contribution to learning and improved outcomes reflecting NICE Guidance (National Institute for Health and Care Excellence. [NG43], 2017; National Institute for Health and Care Excellence [NG213], 2022; National Institute for Health and Care Excellence. [NG61], 2019). Our Transition project addresses gaps in knowledge across the UK.

Statistics from

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.