Article Text

Download PDFPDF

O-18 A qualitative exploration of advance care planning in patients with home NIV for COPD
  1. Emily Kavanagh,
  2. Hannah Billet,
  3. Jolene Brown,
  4. Maxwell Charles,
  5. Felicity Dewhurst,
  6. Elizabeth Flemming,
  7. Craig Gouldthorpe,
  8. Kate Howarth,
  9. Amy Huggin,
  10. Rachel Kiltie,
  11. Andrew Little,
  12. Francesca Mastaglio,
  13. Lucy Robinson,
  14. Grace Rowley,
  15. Lauri Simkiss and
  16. Donna Wakefiel
  1. National Institute for Health Research (NIHR), Health Education North East (HENE), North East Assisted Ventilation Service (NEAVS), North East Palliative Registrars Research and Education Alliance (NEPPRA)


Background The HOT-HMV study in 2017 demonstrated that patients with persistent hypercapnia following an exacerbation of chronic obstructive pulmonary disease (COPD) who received home non-invasive ventilation (NIV) benefitted from prolonged time to readmission. Advance care planning (ACP) is recognised as being able to improve palliative care outcomes for patients with COPD. This study aimed to explore the benefits of and barriers to ACP in patients with COPD on home-NIV and how barriers might be addressed.

Methods Semi-structured qualitative interviews were conducted with health care professionals (HCP) from the North East Assisted Ventilation Service (NEAVS) (12 interviews) and with patients (11 interviews). Interviews were analysed using the principles of thematic analysis.

Results The findings emphasised the importance of ACP whilst also raising a number of challenges. NEAVS is a regional service therefore multiple local teams are also involved in patient care, resulting in a lack of clarity of responsibility for ACP conversations and geographical disparity with care continuity. HCP felt COPD patients were an under-served group both in medicine and society. They often have an uncertain disease trajectory resulting in difficulty in ascertaining appropriate timing for initiation of conversations. The patient group gave insights into the factors that affected their engagement in ACP discussions including high levels of anxiety and communication factors, notably a reduction in face-to-face consultations due to Covid-19.

Conclusions This study allowed us to map out many of the perceived challenges facing patients with COPD on home-NIV in carrying out meaningful and timely ACP. Being conscious of the challenges allows a deeper understanding and awareness of the importance of individualised ACP discussions. The study supports a review of the structure of similar services to formally incorporate ACP and assign responsibility. Formal palliative care involvement is also suggested, to provide both education for HCP and direct patient input.

Statistics from

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.