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  • 12 ‘From my perspective’ – the development and evaluation of both individualised & immersive audio listening experiences to improve mental health and well-being for patients within a palliative care context: a feasibility study

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Mental and physical health and wellbeing
12 ‘From my perspective’ – the development and evaluation of both individualised & immersive audio listening experiences to improve mental health and well-being for patients within a palliative care context: a feasibility study
  1. I Gibson1,
  2. P Rebelo1,
  3. A Roulston2,
  4. T McConnell3,4 and
  5. P Best2
  1. 1School of Arts, English and Languages (SARC), Queen’s University Belfast
  2. 2School of Social Science, Education and Social Work, Queen’s University Belfast
  3. 3School of Nursing and Midwifery, Queen’s University Belfast
  4. 4Marie Curie Hospice UK

Abstract

Introduction There is a dearth of innovative creative arts-based interventions used in palliative care to benefit patients. ‘From My Perspective’ (FMP) uses audio-recorded interviews, combined with music and sound design elements, to create a physical ‘Memory Box’ of narrative storytelling by palliative care patients.

Aims FMP aims to:

  1. Determine the acceptance and potential benefits of FMP for patients.

  2. Measure well–being, quality of life and symptoms pre and post intervention.

Method Upon receipt of ethical and governance approval, ten participants were recruited from a day hospice (n=10) for a mixed-methods study. After obtaining written consent, quantitative data was collected at T1 (prior to intervention), T2 (1-week post-intervention) and T3 (1-month follow-up) using validated tools (i.e., MQOL, ESAS and WHO-5). Semi-structured interviews based around the theme of biographical life-story narratives were conducted with participants. Bespoke questionnaires were administered to collect qualitative data that was analysed using NVIVO.

Results Ten participants (5 male/5 female, mean age of 69.5 years), all diagnosed with cancer completed the audio-recorded interviews. Analysis of qualitative data revealed three themes: family-shared experiences, legacy, and communication.

Conclusion Evidence suggests the acceptability of FMP within palliative care, in addition to the potential benefits it can have for patients relating to family-shared experiences, legacy and communication whilst also providing patients with the opportunity to capture and share their life-story narratives in both a unique and meaningful way. Large-scale implementation with a greater sample size is required to further understand these benefits.

Impact This study provides data to support a larger scale study to explore the effectiveness of FMP for improving quality of life and family shared experiences for palliative care patients and their families. Staff involved in recruitment suggest this study has had a positive impact on patients which need to be explored further in a randomized controlled trial.

https://doi.org/10.1136/spcare-2021-MCRC.12

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