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3 Developing a typology for out-of-hours community service provision for patients nearing the end of life and their families
  1. AM Firth1,
  2. CP Lin1,
  3. J Goodrich1,
  4. R Harding1,
  5. FEM Murtagh2 and
  6. CJ Evans1
  1. 1Cicely Saunders Institute, King’s College London
  2. 2Hull York Medical School

Abstract

Introduction Although people with advanced illness increasingly die at home, we lack a detailed understanding of how community palliative care outside normal working hours (‘out-of-hours’) is provided. It appears to be highly variable. The lack of description around ‘out-of-hours’ models leads to poor quality service evaluations.

Aims To review systematically, the evidence for models of out-of-hours community care for patients with advanced illness near the end of life and their families. To construct a typological framework of different categories of service provision.

Method A systematic narrative review using a two-stage search strategy: 1) Four databases searched (1990-2019). Studies reported processes and/or outcomes around the delivery of out-of-hours palliative care. 2) Update of Cochrane review (2010) on home-based palliative care to identify trials including out-of-hours care. Components of the out-of-hours care were extracted and narrative synthesis used to construct a typology of out-of-hours care.

Results 61 papers met eligibility criteria. Three over-arching components were identified to characterise different categories, comprising: 1. service times (24/7 or out-of-hours only service), 2. focus of team delivering the care (specialist palliative care/dedicated palliative care, general palliative care or integrated specialist/general) and 3. type of care delivered (hands-on or advisory). These components were used to create a multi-dimensional typology and 15 categories of services were created. Overall, the models of out-of-hours care reported lacked description. Only 8 studies evaluated the impact of the out-of-hours service models on stated outcomes. Most frequently reported outcomes were place of death and service use.

Conclusion A novel typology to understand, classify, and compare out-of-hours community-based care has been constructed. Under-reporting of the different components of out-of-hours care alongside meaningful outcomes is a barrier to the development of the science in this crucial aspect of palliative care delivery.

Impact This well-defined typology of out-of-hours services for palliative care patients provides a systematic understanding of which models of service provision are available to patients and their families. It can be used to accurately describe a range of models or care and will enable comparisons of similarity/dissimilarity of service provision out-of-hours.

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