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Building on sand: digital technologies for care coordination and advance care planning
  1. Matthew John Allsop1,
  2. Karen Chumbley2,
  3. Jacqueline Birtwistle1,
  4. Michael I Bennett1 and
  5. Lucy Pocock3
  1. 1 Academic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK
  2. 2 North East Essex Health and Wellbeing Alliance, Colchester, UK
  3. 3 Centre for Academic Primary Care, University of Bristol Medical School, Bristol, UK
  1. Correspondence to Dr Matthew John Allsop, Academic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds LS2 9LJ, UK; m.j.allsop{at}


Approaches using digital technologies to support advance care planning (ACP) and care coordination are being used in palliative and end of life care. While providing opportunities to facilitate increases in the completeness, sharing and availability of care plans, the evidence base underpinning their use remains limited. We outline an approach that continues to be developed in England; Electronic Palliative Care Coordination Systems (EPaCCS). Stages governing their optimal use are outlined alongside unanswered questions with relevance across technology-mediated approaches to ACP. Research has a critical role in determining if technology-mediated approaches to ACP, such as EPaCCS, could be useful tools to support the delivery of care for patients with chronic and progressive illnesses.

  • clinical decisions
  • methodological research
  • communication

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  • Twitter @matthewallsop, @drpoco

  • Contributors MJA drafted the initial manuscript. KC, JB, MIB and LP were involved in the subsequent development and reporting of the manuscript. All authors approved the final manuscript. MJA is responsible for overall content as guarantor.

  • Funding MJA is supported by Yorkshire Cancer Research University Academic Fellowship funding. KC, JB, MIB and LP have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; internally peer reviewed.