Objectives First, to assess if Electronic Palliative Care Coordination Systems (EPaCCS) was used by different organisations as a tool to share information; second, to assess whether there was a measurable benefit with patients dying at their preferred place of death.
Methods A retrospective analysis of the 65 decedents from last 12 months in the registered list of a single practice in Leeds was conducted.
Results EPaCCS was present in 24 patients (36.9%). It was used by more than one organisation in 17 cases (70.9%). It facilitated death at the preferred place in 19 of the 20 cases (95%) were preferences were recorded.
Conclusions EPaCCS within the organisation was not used as widely as it could have been presumed. Having a patient with an EPaCCS in the electronic medical records did not imply there was sharing of information among the different organisations involved. Although there was a clear impact on individuals dying at their preferred place of death, preferences were not necessarily recorded in EPaCCS.
- health information technologies
- information sharing
- palliative care
- primary care
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Contributors The manuscript is original work from the author.
Competing interests The author was involved in the original project to roll out Electronic Palliative Care Coordination Systems in Leeds.
Provenance and peer review Not commissioned; internally peer reviewed.