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Paediatric palliative care: a systematic review
  1. Stefan Nilsson1,2,
  2. Joakim Ohlen1,2,3,
  3. Eva Hessman4 and
  4. Margareta Brännström1,5
  1. 1 Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  2. 2 University of Gothenburg Centre for Person-Centred Care, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
  3. 3 Palliative Centre, Sahlgrenska University Hospital Västra Götaland, Gothenburg, Sweden
  4. 4 Biomedical Library, Gothenburg University Library, University of Gothenburg, Gothenburg, Sweden
  5. 5 Department of Nursing, Umeå University, Campus Skellefteå, Umeå, Sweden
  1. Correspondence to Dr Stefan Nilsson, University of Gothenburg Institute of Health and Care Sciences, 413 46 Goteborg, Sweden; stefan.nilsson.4{at}


Objectives To review literature relating to evidence, context and facilitation to describe knowledge translation in paediatric palliative care. Paediatric palliative care requires competences including both paediatric specialists as well as services that are developed for this purpose, and there is a need to facilitate paediatric palliative care knowledge translation. Promoting Action on Research Implementation in the Health Services (PARiHS) is a framework for knowledge translation, which highlights the relationships between evidence, context and facilitation. PARiHS framework has been revised and updated in a new version called i-PARiHS.

Methods The electronic databases AgeLine, CINAHL, The Cochrane Library, PsycINFO, PubMed and Scopus were searched. Papers included were limited to English and Swedish publications and restricted to publications dated between 1993 and August 2019. All types of observational and experimental studies using any research design were included.

Results and conclusions Thirty-eight articles were included and there was a common vision about how and when palliative care should be offered to children. The i-PARiHS was used as a lens to describe the knowledge translation in paediatric palliative care. Symptom relief was the most commonly described evidence-based strategy, and the hospital environment was the most commonly described context. Different types of education were the most commonly used strategies to facilitate knowledge translation. The results mainly focused on increasing knowledge of palliative care in paediatric care. To sum up, the results report strategies to achieve knowledge translation of paediatric palliative care, and these can be interpreted as a guideline for how this process can be facilitated.

Trial registration number CRD42018100663.

  • symptoms and symptom management
  • supportive care
  • service evaluation
  • paediatrics

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  • Contributors SN, JO, EH and MB contributed to the study design, data collection, analysis and writing of the manuscript.

  • Funding The writing of this article has been supported by the Swedish Childhood Cancer Foundation and the Rönnbäret Foundation

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Provenance and peer review Not commissioned; externally peer reviewed.