User profiles for "author:S Sivell"
 | Dr Stephanie SivellCardiff University Verified email at cf.ac.uk Cited by 3092 |
[HTML][HTML] Process and outcome in communication of genetic information within families: a systematic review
CL Gaff, AJ Clarke, P Atkinson, S Sivell… - European Journal of …, 2007 - nature.com
The communication of risk is a central activity in clinical genetics, with genetic health
professionals encouraging the dissemination of relevant information by individuals to their at …
professionals encouraging the dissemination of relevant information by individuals to their at …
How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review
As an individual's understanding of their genetic risk may influence risk management
decisions, it is important to understand the ways in which risk is constructed and interpreted …
decisions, it is important to understand the ways in which risk is constructed and interpreted …
The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the …
Background Home is often reported as the preferred place of care for patients at the end-of-
life. The support of family caregivers is crucial if this is to be realised. However, little is known …
life. The support of family caregivers is crucial if this is to be realised. However, little is known …
[HTML][HTML] Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi)
…, S Khangura, A Saarimaki, S Sivell… - PloS one, 2009 - journals.plos.org
Objectives To describe the development, validation and inter-rater reliability of an instrument
to measure the quality of patient decision support technologies (decision aids). Design …
to measure the quality of patient decision support technologies (decision aids). Design …
Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process
Objective. The IPDAS Collaboration has developed a checklist and an instrument (IPDASi
v3. 0) to assess the quality of patient decision aids (PDAs) in terms of their development …
v3. 0) to assess the quality of patient decision aids (PDAs) in terms of their development …
How to develop web-based decision support interventions for patients: a process map
OBJECTIVE: Significant advances have been made in the development of decision support
interventions, also called decision aids, for patients facing difficult or uncertain decisions …
interventions, also called decision aids, for patients facing difficult or uncertain decisions …
[HTML][HTML] Safety, tolerability and efficacy of intra-articular Progenza in knee osteoarthritis: a randomized double-blind placebo-controlled single ascending dose study
D Kuah, S Sivell, T Longworth, K James… - Journal of Translational …, 2018 - Springer
Background Cell therapies are being investigated as potential disease modifying treatment
options for osteoarthritis (OA). Progenza (PRG) comprises in vitro expanded mesenchymal …
options for osteoarthritis (OA). Progenza (PRG) comprises in vitro expanded mesenchymal …
Interventions to improve risk communication in clinical genetics: systematic review
OBJECTIVE: Effective risk communication may enable clients to participate effectively in
decision-making about their health and health care. A systematic review of existing literature …
decision-making about their health and health care. A systematic review of existing literature …
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
Background: The COVID-19 pandemic is a mass bereavement event which has profoundly
disrupted grief experiences. Understanding support needs and access to support among …
disrupted grief experiences. Understanding support needs and access to support among …
Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus …
S Sivell, H Prout, N Hopewell-Kelly… - BMJ supportive & …, 2019 - spcare.bmj.com
Objectives To present and discuss the views of researchers at an academic palliative care
research centre on research encounters with terminally ill patients in the home setting and to …
research centre on research encounters with terminally ill patients in the home setting and to …