Background There is insufficient evidence to guide decisions around (non‐) disclosure of
bad news of life‐limiting illness and death to people with intellectual disabilities. Aim The …

This paper presents two studies using focus groups with people with learning disabilities.
One study was about" What is it like for people with learning disabilities who have a family or …

Accessible summary• I had cancer, but I got better. This story is about what happened in my
life, and about having cancer.• I was born with cerebral palsy and learning disabilities. My …

Atopic dermatitis (AD), commonly known as eczema, is a chronic, pruritic inflammatory skin
disease associated with a profound physical and psychosocial burden, which can contribute …

PURPOSE: To explore the experiences of people with intellectual disabilities (ID) who have
a relative or friend with cancer, and to identify their support needs. METHODS AND …

Objectives: Although atopic dermatitis (AD) has significant impacts on quality of life, data
from Canada on the subject are limited. This survey aims to assess the burden of moderate …

People with learning disabilities should be at the centre of designing and testing ways to
make planning for the end of their lives better. This paper describes how involving, training …

Accessible summary We are a team of four researchers, two of whom have learning
disabilities. We did two studies using focus groups with people with learning disabilities …

Background Reviews and inquiries into end of life care for people with learning disabilities
consistently recommend that services involve them in end of life care planning. However …

Good communication and support for carers and families during patients' illness and after
death are important aspects of high quality care, recognised in UK cancer and palliative care …