Table 3

Aspects of symptom control and communication with the healthcare team (HCT) as perceived by the bereaved relatives*

Local survey of bereaved relatives (n=858)
The control of pain and other symptomsn%
10. In your opinion, during the last 2 days, did s/he appear to be in pain? (n=845)
 Yes, all of time769
 Yes, some of time33540
 No, s/he did not appear to be in pain43451
Missing data131.5
11. In your view, did the doctors and nurses do enough to help relieve the pain? (n=833)
 Yes, all of time43752
 Yes, some of time19323
 No, not at all344
 Not applicable, s/he was not in pain16920
Missing data252.9
12. In your opinion, during the last 2 days, did s/he appear to be restless? (n=844)
 Yes, all of time11213
 Yes, some of time39947
 No, s/he did not appear to be restless33339
Missing data141.6
13. In your view, did the doctors and nurses do enough to help relieve the restlessness? (n=830)
 Yes, all of time28234
 Yes, some of time25531
 No, not at all547
 Not applicable, s/he was not restless23929
Missing data283.3
14. In your opinion, during the last 2 days, did s/he appear to have a ‘noisy rattle’ to his/her breathing? (n=833)
 Yes, all of time13016
 Yes, some of time27433
 No, s/he did not have a ‘noisy rattle’ to the breathing42952
Missing data252.9
15. In your view did the doctors and nurses do enough to help relieve the ‘noisy rattle’ to his/her breathing? (n=807)
 Yes, all of time18823
 Yes, some of time16921
 No, not at all597
 Not applicable, s/he was not restless39148
Missing data515.9
Communication with the HCTN%
8. The nurses had time to listen and discuss his/her condition with me
 Strongly agree29034
 Agree33640
 Neither agree nor disagree9011
 Disagree8210
 Strongly disagree496
Missing data111.3
9. The doctors had time to listen and discuss his/her condition with me
 Strongly agree28434
 Agree32639
 Neither agree nor disagree10112
 Disagree789
 Strongly disagree435
Missing data263.0
16. During the last 2 days how involved were you with the decisions about his/her care and treatment? (n=839)
 Very involved40248
 Fairly involved23728
 Not involved20024
Missing data192.2
17. Did any of the healthcare team discuss with you whether giving fluids through a ‘drip’ would be appropriate in the last 2 days of life? (n=818)
 Yes32339
 No41150
 Do not know8410
Missing data404.7
18. Would a discussion about the appropriateness of giving fluids through a ‘drip’ in the last 2 days of life have been helpful? (n=791)
 Yes27935
 No23029
 Not applicable, we had these types of discussion28236
Missing data677.8
23. Before s/he died, were you told s/he was likely to die?
 Yes61674
 No21926
Missing data232.7
24. Did a member of the healthcare team talk to you about what to expect when s/he was dying (eg, symptoms that may arise)?
 Yes37746
 No43854
Missing data435.0
25. Would a discussion about what to expect when s/he was dying have been helpful?
 Yes35544
 No14117
 Not applicable, we had these types of discussion31439
Missing data485.6
  • *Missing data are presented as exact numbers (and percentages) for each of the questions within the tables. The cases of missing data were then excluded from all subsequent analysis and ‘valid’ percentages were calculated. Hence, the percentages within the tables are >100%.