Local survey of bereaved relatives (n=858) | ||
---|---|---|
The control of pain and other symptoms | n | % |
10. In your opinion, during the last 2 days, did s/he appear to be in pain? (n=845) | ||
Yes, all of time | 76 | 9 |
Yes, some of time | 335 | 40 |
No, s/he did not appear to be in pain | 434 | 51 |
Missing data | 13 | 1.5 |
11. In your view, did the doctors and nurses do enough to help relieve the pain? (n=833) | ||
Yes, all of time | 437 | 52 |
Yes, some of time | 193 | 23 |
No, not at all | 34 | 4 |
Not applicable, s/he was not in pain | 169 | 20 |
Missing data | 25 | 2.9 |
12. In your opinion, during the last 2 days, did s/he appear to be restless? (n=844) | ||
Yes, all of time | 112 | 13 |
Yes, some of time | 399 | 47 |
No, s/he did not appear to be restless | 333 | 39 |
Missing data | 14 | 1.6 |
13. In your view, did the doctors and nurses do enough to help relieve the restlessness? (n=830) | ||
Yes, all of time | 282 | 34 |
Yes, some of time | 255 | 31 |
No, not at all | 54 | 7 |
Not applicable, s/he was not restless | 239 | 29 |
Missing data | 28 | 3.3 |
14. In your opinion, during the last 2 days, did s/he appear to have a ‘noisy rattle’ to his/her breathing? (n=833) | ||
Yes, all of time | 130 | 16 |
Yes, some of time | 274 | 33 |
No, s/he did not have a ‘noisy rattle’ to the breathing | 429 | 52 |
Missing data | 25 | 2.9 |
15. In your view did the doctors and nurses do enough to help relieve the ‘noisy rattle’ to his/her breathing? (n=807) | ||
Yes, all of time | 188 | 23 |
Yes, some of time | 169 | 21 |
No, not at all | 59 | 7 |
Not applicable, s/he was not restless | 391 | 48 |
Missing data | 51 | 5.9 |
Communication with the HCT | N | % |
8. The nurses had time to listen and discuss his/her condition with me | ||
Strongly agree | 290 | 34 |
Agree | 336 | 40 |
Neither agree nor disagree | 90 | 11 |
Disagree | 82 | 10 |
Strongly disagree | 49 | 6 |
Missing data | 11 | 1.3 |
9. The doctors had time to listen and discuss his/her condition with me | ||
Strongly agree | 284 | 34 |
Agree | 326 | 39 |
Neither agree nor disagree | 101 | 12 |
Disagree | 78 | 9 |
Strongly disagree | 43 | 5 |
Missing data | 26 | 3.0 |
16. During the last 2 days how involved were you with the decisions about his/her care and treatment? (n=839) | ||
Very involved | 402 | 48 |
Fairly involved | 237 | 28 |
Not involved | 200 | 24 |
Missing data | 19 | 2.2 |
17. Did any of the healthcare team discuss with you whether giving fluids through a ‘drip’ would be appropriate in the last 2 days of life? (n=818) | ||
Yes | 323 | 39 |
No | 411 | 50 |
Do not know | 84 | 10 |
Missing data | 40 | 4.7 |
18. Would a discussion about the appropriateness of giving fluids through a ‘drip’ in the last 2 days of life have been helpful? (n=791) | ||
Yes | 279 | 35 |
No | 230 | 29 |
Not applicable, we had these types of discussion | 282 | 36 |
Missing data | 67 | 7.8 |
23. Before s/he died, were you told s/he was likely to die? | ||
Yes | 616 | 74 |
No | 219 | 26 |
Missing data | 23 | 2.7 |
24. Did a member of the healthcare team talk to you about what to expect when s/he was dying (eg, symptoms that may arise)? | ||
Yes | 377 | 46 |
No | 438 | 54 |
Missing data | 43 | 5.0 |
25. Would a discussion about what to expect when s/he was dying have been helpful? | ||
Yes | 355 | 44 |
No | 141 | 17 |
Not applicable, we had these types of discussion | 314 | 39 |
Missing data | 48 | 5.6 |
*Missing data are presented as exact numbers (and percentages) for each of the questions within the tables. The cases of missing data were then excluded from all subsequent analysis and ‘valid’ percentages were calculated. Hence, the percentages within the tables are >100%.