Table 4

Observed outcomes in the survey response sample (n=681, nC=333, nI=348)

OutcomeControlMissing (%)InterventionMissing (%)
CSNAT total (SD)20.9 (−7.6)17 (5)21 (−7.4)14 (4)
Asked about support needs (%)
 ‘Never’31 (10)9 (3)25 (8)17 (5)
 ‘Sometimes’53 (18)78 (26)
 ‘Usually’56 (19)71 (23)
 ‘Always’132 (44)106 (35)
 ‘Not applicable’30 (10)25 (8)
Listened to (%)
 ‘Never’12 (4)10 (3)14 (5)15 (5)
 ‘Sometimes’24 (8)25 (8)
 ‘Usually’46 (15)69 (22)
 ‘Always’182 (60)177 (57)
 ‘Not applicable’37 (12)22 (7)
Unable to discuss concerns (%)
 ‘Always’3 (1)20 (6)2 (1)26 (8)
 ‘Usually’8 (3)8 (3)
 ‘Sometimes’56 (19)61 (21)
 ‘No never’203 (70)198 (67)
 ‘Don’t know’21 (7)27 (9)
TRIG-1 early grief (SD)23.3 (−8.2)17 (5)21.7 (−7.7)15 (5)
TRIG-2 present grief (SD)49.9 (−11.4)12 (4)48.4 (−11.2)6 (2)
SF-12 mental (SD)39.2 (−11.8)5 (2)40.5 (−11.3)7 (2)
SF-12 physical (SD)48.5 (−11.7)5 (2)51.1 (−10.1)7 (2)
Distress level (SD)4.6 (−2.6)2 (1)4.4 (−2.7)10 (3)
Median number of carer GP visits since death (range)1 (0, 11)8 (3)1 (0, 12)8 (2)
Place of death was best place (%)
 Yes224 (73)3 (1)261 (82)3 (1)
 Other84 (27)58 (18)
Place of death at home (survey) (%)
 Yes140 (45)2 (1)171 (53)2 (1)
 No169 (55)149 (47)
Place of death at home (service—respondents only) (%)
 Yes148 (48)0 (0)180 (56)0 (0)
 No163 (52)142 (44)
Place of death at home (service—all records) (%)
 Yes1040 (46)23 (1)1044 (52)25 (1)
 No1206 (54)973 (48)
  • Note: these summaries are unadjusted for sample sizes at each site and time and for other covariates.

  • CSNAT, Carer Support Needs Assessment Tool; GP, general practitioner; TRIG, Texas Revised Inventory of Grief.