Patients’ experience of eating-related distress (n=37)
| Items | agree–strongly agree n (%, 95% CI) | n |
|---|---|---|
| Mechanisms originating from patients themselves | ||
| I have concerned myself with my daily diet | 15 (43, 26 to 59) | 35 |
| I feel that a lack of nutrition makes my condition worse | 14 (42, 26 to 59) | 33 |
| It has been useless for me to consult with medical staff about my daily diet | 2 (7, 0 to 16) | 29 |
| Mechanisms originating from the relationship between patients and their families | ||
| I feel that I disregard the kindness of a person who makes meals for me when I cannot eat | 14 (39, 23 to 55) | 36 |
| Although family members and friends recommend various foods to me, I am just confused | 12 (36, 20 to 53) | 33 |
| I try to have a good meal not for myself but for family members | 6 (17, 4 to 29) | 36 |
| I avoid talking about food and eating with family members | 5 (15, 3 to 27) | 33 |
| I am burdened by meals that are made for me with kindness | 5 (14, 3 to 25) | 36 |
| I often experience conflict about meals when a person makes them for me | 2 (6, 0 to 13) | 36 |
| Presentations | ||
| I am disappointed to find that I cannot eat enough | 13 (39, 23 to 56) | 33 |
| I often feel that I am forced to eat | 4 (12, 1 to 23) | 34 |
| Coping strategies | ||
| I feel it is a natural course of the disease that I cannot get enough nutrition and that I lose weight | 21 (60, 44 to 76) | 35 |
| I have eaten what I want without consideration of calories and nutritional composition | 18 (55, 38 to 72) | 33 |
| I have tried to eat various foods | 16 (46, 29 to 62) | 35 |
| I feel I should make an effort to get enough nutrition even if I have anorexia | 15 (44, 27 to 61) | 34 |
| I have tried to eat a high-calorie and well-balanced diet | 13 (41, 24 to 58) | 32 |
| I would like to consult with an expert who has specific knowledge of nutrition therapy | 10 (29, 14 to 45) | 34 |
| I think that losing weight results from a lack of nutrition and that I can gain weight if I get enough nutrition | 7 (19, 7 to 32) | 36 |
| I think that I cannot eat because of a lack of effort on my part | 6 (17, 4 to 29) | 36 |