| Care process | | | | | |
| I want nature to guide my life | | | | | |
| Patient's response | 4.7 | 5.5 | 47.7 | 41.4 | 0.8 |
| Carer view | 1.0 | 8.0 | 69.0. | 22.0 | |
| I do NOT want to be fed artificially by tube | | | | | |
| Patient's response | 9.4 | 16.4 | 46.9 | 26.6 | 0.8 |
| Carer view | 6.0 | 39.0 | 41.0 | 10.0 | 3.0 |
| I want to be free of pain even if the treatment may make me drowsy because of its side effects | | | | | |
| Patient's response | 5.5 | 15.6 | 50.8 | 27.3 | 0.8 |
| Carer view | 1.0 | 2.0 | 73.0 | 24.0 | |
| I do NOT want to be intubated and given external cardiac message (CPR) if I have stop breathing and heart beat | | | | | |
| Patient's response | 10.2 | 28.9 | 39.8 | 21.1 | |
| Carer view | 8.0 | 52.0 | 29.0 | 10.0 | 1.0 |
| I do not want to be intubated for breathing if I cannot breath sufficiently to sustain the life | | | | | |
| Patient's response | 9.4 | 26.6 | 42.2 | 21.1 | 0.8 |
| Carer view | 9.0 | 48.0 | 34.0 | 7.0 | 2.0 |
| I want to be given repeated courses of antibiotics for infection despite no improvement noted | | | | | |
| Patient's response | 13.3 | 35.9 | 38.3 | 10.9 | 1.6 |
| Carer view | 7.0 | 30.0 | 57.0 | 5.0 | 1.0 |
| Decision making process | | | | | |
| I want my doctor(s) to make all decisions | | | | | |
| Patient's response | 2.3 | 13.3 | 53.9 | 29.7 | 0.8 |
| Carer view | 8.0 | 17.0 | 60.0 | 15.0 | |
| I want my family to make all decisions for me | | | | | |
| Patient's response | 10.9 | 35.9 | 46.1 | 6.3 | 0.8 |
| Carer view | 6.0 | 53.0 | 38.0 | 3.0 | |
| I want to make decision by myself | | | | | |
| Patient's response | 4.7 | 22.7 | 53.9 | 18.0 | 0.8 |
| Carer view | 2.0 | 29.0 | 58.0 | 11.0 | |
| I want to make conjoint decision with my family | | | | | |
| Patient's response | 4.7 | 26.6 | 53.1 | 15.6 | |
| Carer view | 3.0 | 16.0 | 57.0 | 24.0 | |
| Respond to hypothetical conditions |
| 1) I have dementia and currently need major assistance in self care, cannot verbally communicate and eats very little/does not eat. I prefer: |
| | | | patient | carer |
| to be fed by a tube that needs to be changed every 1–4 weeks, and my hands may need to be tied to prevent me from pulling it | 7.0 | 11.0 |
| to continue with small oral feed even if I may progressive lost weight and weaker | 93.0 | 87.0 |
| Uncertain | | 2.0 |
| 2) I have chronic lung disease and have shortness of breath even with feeding. To reduce the shortness of breath, I prefer |
| | | | patient | carer |
| to use a ventilator through face mask all day even if you pulled it off yourself when medical team had used it to rescue you | 27.3 | 36 |
| to use oral medication even if there may have possible risks/side effects that make me drowsy | 72.7 | 64 |
| 3) I have chronic lung disease and have shortness of breath even with feeding. To reduce the shortness of breath, I prefer |
| | | | patient | carer |
| to use a ventilator through face mask all day even if you pulled it off yourself when medical team had used it to rescue you | 27.3 | 36 |
| to use oral medication even if there may have possible risks/side effects that make me drowsy | 72.7 | 64 |
| Preference on advance care planning |
| Overall, do you wish your medical doctor to discuss with you on these treatment options when you are approaching an advanced stage of disease but not acutely ill? |
| | | | patient | carer |
| Discuss with me (patient)only | 21.1 | 9.1 |
| Discuss with me and my relative together | 57.0 | 70.7 |
| Not to discuss at all, doctor make decision | 12.5 | 8.1 |
| Discuss with relative only | 9.4 | 12.1 |