A qualitative analysis of the elements used by palliative care clinicians when formulating a survival estimate

BMJ Support Palliat Care. 2013 Sep;3(3):330-4. doi: 10.1136/bmjspcare-2012-000320. Epub 2012 Dec 1.

Abstract

Objective: For patients with advanced and/or incurable disease, clinicians are often called upon to formulate and communicate an estimate of likely survival duration. The objective of this study was to gain a deeper appreciation of this process by identifying and exploring the specific elements that may inform and/or impact a clinician's estimate of survival (CES).

Methods: Semistructured interviews were conducted among a group of palliative care clinicians in the setting of a tertiary academic health sciences centre. Qualitative data were subsequently analysed using a grounded theory approach.

Results: Five major themes were identified as being central to the process of CES formulation: use of objective patient-specific elements, strength of the patient-clinician relationship, purpose and context of an individual CES, perceived role of hope and the overall likelihood of CES inaccuracy.

Conclusions: For any given patient, several elements have the potential to inform and/or impact the process of CES formulation. Study participants were aware of objective clinical factors known to correlate with actual survival duration and likely integrate this information when formulating a CES. Formulation occurs within a larger context comprised of a number of elements that may influence individual estimates. These elements exist against a background of awareness of the overall likelihood of CES inaccuracy. Clinicians are encouraged to develop a personalised and standardised approach to CES formulation whereby an awareness of the menu of potentially impacting elements is consciously integrated into an individual process.

Keywords: Hospice care; Palliative Care; Prognosis; Survival Estimation.

MeSH terms

  • Chronic Disease / mortality*
  • Chronic Disease / therapy*
  • Female
  • Hope
  • Humans
  • Interview, Psychological
  • Male
  • Nurse-Patient Relations
  • Palliative Care / statistics & numerical data*
  • Patient Care Team
  • Physician-Patient Relations
  • Prognosis
  • Sick Role
  • Survival Analysis*
  • Terminal Care / statistics & numerical data*