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Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from
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  • Published on:
    EPaCCS and the need for research
    • Matthew J Allsop, Research Fellow in Applied Health
    • Other Contributors:
      • Michael I Bennett

    We agree with Sleeman and Higginson [1] who emphasised the need to gather evidence of effectiveness of EPaCCS before widespread and uncritical adoption by the NHS. An EPaCCS evaluation framework was recently developed by our team on behalf of end of life commissioners in Leeds [2]. There was, and remains, a scarcity of guidance on approaches to gathering evidence for EPaCCS but we identified factors that highlight the c...

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    Conflict of Interest:
    None declared.
  • Published on:
    Warning - EPaCCS may NOT facilitate home deaths

    As the lead of a Marie Curie funded study of EPaCCS, I welcome the attention that electronic palliative care systems are increasingly receiving. However unlike Petrova et al, I believe the "striking" EPaCCS results on facilitating home deaths mentioned by Petrova et al may largely be explained by selection bias.

    In our mixed methods study, we too found impressive results in that those with an electronic EPaCCS...

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    Conflict of Interest:
    None declared.
  • Published on:
    Evidence based policy in palliative care - time to learn from our mistakes
    • Katherine E. Sleeman, NIHR Clinician Scientist in Palliative Medicine
    • Other Contributors:
      • Irene J. Higginson

    The article by Petrova et al is timely and thought provoking.1 EPaCCS (Electronic Palliative Care Coordination Systems) have good face value: they appear so obviously a good idea. But scratch beneath the surface, as Petrova and colleagues have done, and important challenges in public perceptions, funding, information governance, context and health care IT become apparent.

    EPaCCS are electronic information system...

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    Conflict of Interest:
    None declared.