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Loss, transition and trust: perspectives of terminally ill patients and their oncologists when transferring care from the hospital into the community at the end of life
  1. Clare Smith1,
  2. Nick Bosanquet2,
  3. Julia Riley1 and
  4. Jonathan Koffman3
  1. 1Royal Marsden and Royal Brompton Palliative Care Service, Royal Marsden NHS Foundation Trust, London, UK
  2. 2Imperial College, London, UK
  3. 3Department of Palliative Care, Policy and Rehabilitation, King's College London, Cicely Saunders Institute, London, UK
  1. Correspondence to Dr Clare Smith, Royal Marsden and Royal Brompton Palliative Care Service, Royal Marsden NHS Foundation Trust, Fulham Road, London SW3 6JJ, UK; clare_smith_78{at}hotmail.com

Abstract

Introduction Most people prefer to die at home. However, most continue to die in hospital. Little is known about the impact on the patient of transferring care from acute sector specialist follow-up to the community. In one cancer centre, a new service—Hospital2Home was set up to facilitate this transfer of care. This study aimed to explore patients’ and oncologists’ perspectives of the meanings involved in this transition.

Methods Qualitative study using semistructured one-to-one interviews with 8 terminally ill cancer patients and 13 oncologists. The interviews were audio recorded, transcribed verbatim and analysed using the framework approach.

Results 3 main themes were identified: loss, transition and community care. The theme of loss referred to losses associated with the end of treatment and losses associated with the familiar safe relationship between the patient and oncologist. Transition refers to the change from hospital-led to community-based care. Barriers to transition included patient and family acceptance, attachment and concerns about community services. Transition was more acceptable if initiated in a gradual manner. Community care: participants found the Hospital2Home service crucial in establishing new trustworthy relationships between community providers and the patient.

Conclusions Transfer of care from the acute sector to the community represents a delicate crossroad where complex notions of loss should not be underestimated. A gradual transfer of care may improve this if the patient's condition allows. Therefore, introductions to the community team should be timely, and a staggered transfer should be planned. This would improve the experience of the patient, carer and oncologist.

  • Cancer
  • Communication
  • Transitional care
  • Home care
  • Received 17 November 2015.
  • Revision received 1 March 2016.
  • Accepted 10 May 2016.

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  • Received 17 November 2015.
  • Revision received 1 March 2016.
  • Accepted 10 May 2016.
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