Article Text

other Versions

PDF
Potential triggers for the holistic assessment of people with severe chronic obstructive pulmonary disease: analysis of multiperspective, serial qualitative interviews
  1. D Cawley1,
  2. J Billings2,
  3. D Oliver3,
  4. M Kendall4 and
  5. H Pinnock5
  1. 1Centre for Professional Practice, University of Kent, Chatham Maritime, Kent, UK
  2. 2Reader in Applied Health Research, Centre for Health Services Studies, University of Kent, Canterbury, Kent, UK
  3. 3Honorary Reader / Consultant in Palliative Medicine, Centre for Professional Practice, University of Kent, Chatham Maritime, Kent, UK
  4. 4Senior research Fellow, Primary Palliative Care Research Group, Centre for Population Health Studies, The University of Edinburgh, Edinburgh, Scotland, UK
  5. 5Reader, Allergy and Respiratory Research Group, Centre for Population Health Studies, The University of Edinburgh, Chatham Maritime, Kent, UK
  1. Correspondence to Dr Declan Cawley, Centre for Professional Practice, University of Kent, Medway Campus, Compass Centre South, Chatham Maritime, Kent, ME4 4YG, UK; D.Cawley{at}kent.ac.uk

Abstract

Objectives This study explores the narrative accounts of chronic obstructive pulmonary disease (COPD) to identify events that potentially could act as triggers for provision of supportive and palliative care. Trigger events must have meaning for the patient/carer, be visible to professionals, and have value in provoking useful actions.

Methods A purposive sample of people with severe COPD, and their informal and professional carers, was recruited from primary/secondary care in Scotland. Indepth participant-led interviews allowed people to tell their illness story. Events occurring throughout the individual's account of the COPD journey were identified, and analysed thematically with regard to the meaning, visibility and use as potential triggers.

Results Events identified from 92 transcripts (21 patients, 13 family carers, 18 professionals) punctuated the disease trajectory and crossed multiprofessional boundaries of care. These reflected advancing disease (increasing carer burden, becoming housebound, appointment frequency, increasing burden of disease, shifting priorities of care) or were an intervention addressing the consequences of advancing disease (requesting disabled parking, home adaptations, hospital admissions). Despite being meaningful in terms of increasing disability, many were invisible to professionals. Others were isolated events symptomatic of wider, ongoing disability which could potentially have use as triggers.

Conclusions Meaningful events can be identified within the story of COPD which reflect wider needs, are clearly visible to alert professionals, and be of use in terms of potentially guiding supportive interventions. To achieve this level of usefulness, services will need to promote health and social care integration with clear processes to facilitate holistic assessment when a trigger is detected.

  • Chronic Obstructive Pulmonary Disease
  • Terminal Care
  • Prognosis
  • Supportive Care
  • Hospice Care
  • Social Care

Statistics from Altmetric.com

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.