An exploratory study of the knowledge, attitudes and perceptions of advance care planning in family caregivers of patients with advanced illness in Singapore
- 1Palliative Medicine, Tan Tock Seng Hospital, Singapore
- 2Dover Park Hospice, Singapore
- 3Care and Counselling Department, Tan Tock Seng Hospital, Singapore
- 4Psychosocial support services, Assisi Hospice, Singapore
- Correspondence to Raymond Ng, Tan Tock Seng Hospital, Palliative Medicine, 11 Jalan Tan Tock Seng, Singapore 308433, Singapore;
Contributors RN conceived, designed and administered the study, carried out interviews, collected data, and contributed towards the analysis and interpretation of data and writing of the paper. SC, TWN, ALC and SL carried out interviews, collected data, and contributed towards the analysis and interpretation of data and writing of the paper.
Objective The aim of this study was to examine the knowledge, attitudes and perceptions of advance care planning (ACP) in caregivers of patients with advanced illness in Singapore.
Methods Family caregivers of patients within the palliative care unit in a hospital and a hospice were purposively recruited and interviewed. Qualitative content analysis was carried out exploring key themes and subthemes emerging from the data.
Results Between May 2009 and May 2010, 18 participants were interviewed. All participants interviewed had low awareness of ACP and the Advance Medical Directive but felt that ACP is important. Perceived benefits of ACP were that it respects autonomy, guides patients and families, and reduces burden of decision-making near the end-of-life. Barriers to ACP include non-disclosure of diagnosis as well as uncertainty of when and how ACP should be broached. There was a reticence to talk openly about issues surrounding end-of-life care as a result of cultural taboo and a fear that doing so will destroy hope. While all participants would consider ACP for themselves, some were ambivalent about discussing ACP for their loved ones, especially when their loved ones were of an older generation. Involvement of the family unit and physicians in ACP were viewed as important.
Conclusion This study highlights the need for public education on the benefits and process of ACP in Singapore. In formulating an approach to ACP, there is a need to take into account cultural sensitivities towards ACP discussions and the importance of closely involving the family unit in the process.
Competing interests None.
Ethics approval The institutional review board of the National Healthcare Group, Singapore.
Provenance and peer review Not commissioned; externally peer reviewed.
- Received 19 March 2012.
- Accepted 17 July 2012.
- Published Online First 4 September 2012
- Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions