Article Text

other Versions

PDF
Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study
  1. Annabel Price1,
  2. William Lee1,
  3. Laura Goodwin1,
  4. Lauren Rayner1,2,
  5. Rosemary Humphreys3,
  6. Penny Hansford4,
  7. Nigel Sykes4,
  8. Barbara Monroe4,
  9. Irene Higginson2 and
  10. Matthew Hotopf1
  1. 1Department of Psychological Medicine, Institute of Psychiatry, King's College London, London, UK
  2. 2Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King's College London, London, UK
  3. 3South London and Maudsley NHS Foundation Trust, London, UK
  4. 4St Christopher's Hospice, London, UK
  1. Correspondence to Dr Annabel Price, Department of Psychological Medicine, Weston Education Centre, 10 Cutcombe Road, London SE5 9RJ, UK; Annabel.Price{at}kcl.ac.uk

Abstract

Objectives To determine the prevalence, severity and remission of desire for hastened death (DHD) in a UK representative sample of patients with advanced disease receiving palliative care and to examine the associations of desire for death.

Design A cross-sectional survey with 4-week follow-up.

Setting St Christopher's Hospice, Sydenham, South London, which is a large hospice with homecare, outpatient and inpatient facilities serving five London boroughs.

Participants 300 patients newly referred to the hospice for palliative care.

Main outcome measures The Desire for Death Rating Scale (DDRS).

Results At T1 33/300 (11%) reported DHD and 11/300 (3.7%) had more serious or pervasive DHD. Of those who expressed DHD at T1 and were interviewed at both time points, 35% no longer reported these thoughts. Of those who reported no DHD at T1, 8% reported DHD at T2. The majority of those who had more severe DHD at T1 had a reduced DHD score by T2. Factors associated with T1 DHD included presence of non-malignant disease, depression, more severe physical symptoms, hopelessness and perceived loss of dignity.

Conclusions The prevalence of DHD was at the lower end of that seen in previous studies using similar samples. More severe DHD was uncommon and for most part remitted to some extent during the study. The provision of symptom control and timely detection and intervention for depression coupled with a focus on optimising function, instilling hope and preserving dignity are likely to contribute to alleviation of DHD in patients with advanced illness.

Statistics from Altmetric.com

  • Accepted 7 June 2011.
View Full Text

Footnotes

  • Funding LR is supported by the COMPASS research collaborative and the European Commission's Sixth Framework Programme (contract no. LSHT-CT-2006-037777, EPCRC). WL is a MRC Clinical Training Fellow. AP is supported by St Christopher's Hospice. IJH is a NIHR Senior Investigator. MH is supported by the NIHR Biomedical Research Centre for Mental Health at the South London and Maudsley NHS Foundation Trust and Institute of Psychiatry, King's College London and is a NIHR Senior Investigator.

  • Competing interests None.

  • Ethics approval The study was approved by Institute of Psychiatry NHS Research Ethics Committee (06/Q0706/93).

  • Provenance and peer review Not commissioned; externally peer reviewed.

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.