Coordinate My Care: a clinical service that coordinates care, giving patients choice and improving quality of life
- Clare Smith1,
- Libby Hough1,
- Chi-Chi Cheung2,
- Catherine Millington-Sanders3,
- Eileen Sutton4,
- Joy R Ross1,5,
- Michael Thick5 and
- Julia Riley1,5
- 1The Royal Marsden & Royal Brompton Palliative Care Service, The Royal Marsden NHS Foundation Trust, London, UK
- 2Camden, Islington ELiPSe and UCLH Palliative Care, NHS Camden Provider Services, London, UK
- 3NHS South West London- Richmond Borough Team, London, UK
- 4Service Transformation Strategy & System Management, Urgent Care ‘111’, NHS London, London, UK
- 5National Heart and Lung Institute, Imperial College London, London, UK
- Correspondence to Dr Clare Smith, Palliative Care Research Fellow, The Royal Marsden & Royal Brompton Palliative Care Service, The Royal Marsden NHS Foundation Trust, Fulham Road, London SW3 6JJ, UK;
Introduction If palliative care is to lead the way towards a new model for integrated care, the ability to share information across the whole of health and social care is essential. Coordinate My Care (CMC) is a service dedicated to preserving dignity and autonomy at the end of life. Its care pathways enable health professionals from primary and secondary care to put the patient at the centre of health care delivery. This service is underpinned by an electronic solution. The CMC record can be accessed 24/7 by all health and social care professionals who have a legitimate relationship with the patient.
Patients and methods The record displays diagnosis, prognosis, advanced care plan, resuscitation status and patients wishes for end of life care patients across London. This article is a review of CMC use and outcomes from August 2010- March 2012.
Results 1087 CMC patient records were analysed. The primary diagnosis was non-cancer in 52.3%, cancer in 46.3% and unknown in 1.4%, 42% of all patients were cared for by generalist only and had no specialist palliative care involvement. At the time of analysis 207 had died. Actual place of death was home 38.6%, care/nursing home 16.4%, hospice 12.1% and 30% in hospital. This equates to 55% of patients dying in their usual place of residence and reflects that 70% died outside of hospital.
Conclusion The CMC service has a well defined pathway underpinned by an electronic solution. It has been shown to change culture and deliver fully integrated, personalised end of life care. A pan-London CMC roll out will take place over the next 12 months.
- Accepted 16 August 2012.
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