Article Text

PDF

Developing a carers group
  1. Dorothy Haskins,
  2. Becky Chaddock and
  3. Wendy Ashton
  1. Eden Valley Hospice, Carlisle, Cumbria

Abstract

Introduction It was identified that there was a need to support carers within a multidisciplinary environment. The group enabled carers to meet and share experiences.

It is important to care for the carers.

Aims

  • To provide a structured programme for carers.

  • To impart knowledge and information to carers on a variety of topics.

  • To have a holistic approach to providing support for carers, and to incorporate all members of palliative care team to contribute to the programme.

Methods

  • Evaluated existing service for carers.

  • Visited carers group in another locality.

  • Informally interviewed carers at Day Hospice re: need and content of the programme.

  • Developed a 12 session programme over 6 weeks, meeting weekly at the Hospice.

  • Pilot included Day Hospice patient carers, and then expanded to open referral system.

  • Evaluated each session and then the entire programme.

Results Feedback from evaluation shows carers felt supported, gained motivation and benefitted from useful information.

From pilot session:-

  • 10 sessions scored 100% very satisfied

  • 1 session scored 20% least useful, 20% most useful, 60% very satisfied.

From 2 sessions:-

  • 67% were women

  • 33% were men.

Informal comments were positive. several would like an avenue to continue to meet after group has finished.

Discussion

  • Results show that the need to support and provide information to carers was met

  • At the end of the programme carers reported they felt more supported and better informed

  • Established peer support continues with some carers

  • Feedback showed that it would be more beneficial to have longer sessions over an 8 week period

  • Referrals avenue to be extended to other teams and programme to be more widely publicised.

Conclusion With user involvement we have developed a support service to carers with a focus and structure. This supports and enables carers to care for themselves while caring for others.

Statistics from Altmetric.com

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.